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Cover
Front matter
Title page
Publisher information
Acknowledgment
Preface to the English Edition by Barbara Katz Rothman
Preface to the German Edition
Body matter
1. Introduction: Gene as the Basis for Decision Making?
Distancing as a Research Approach
2. Genetic Education
2.1. The Gene
2.2. Educational Campaigns
2.2.1. Illiterate citizens? A Bremen congress
2.2.2. The genetic literacy campaign
2.2.3. Genetic counselling
2.3. On the History of Genetic Counselling: Genetics as the Foundation of Sociopolitics
2.3.1. The scientific management of hereditary dispositions
2.3.2. More effective than coercion: Education and responsibility
2.3.3. A new goal: The informed decision
3. “Informed Choice”: How Genetic Counsellors Empower their Clients to Attain Self-Determination
3.1. The Initial Transformation of the Person: The Client as a Gene Carrier
3.1.1. The genetic person
3.1.2. The incomprehensible self
3.1.3. Things in the body
3.1.3.1. Visual representations as reproductions of reality
3.1.3.2. Reification through language
3.1.4. Hidden causes
3.1.5. Meaningful information
3.1.6. Internal agents
3.1.7. Genes as an “illusion”
3.2. Second Transformation of the Person: Clients as Risk Carriers
3.2.1. A grave misunderstanding: Risk as diagnosis
3.2.2. The client as a statistical construct
3.2.3. The pathogenic effects of physician-attested risks
3.2.4. Life in irrealis mood
3.2.5. The genetic risk
3.2.6. The genetic self
3.3. The Compulsion to Risk Management: The Decision
3.3.1. The imperative of the autonomous decision
3.3.2. The option requiring a decision: The test
3.3.3. Self-determined helplessness
3.3.3.1. Obligatory risk management
3.3.3.2. Mobilized helplessness
3.3.4. Decision making: The paradox of personal risk assessment
3.3.4.1. Amniocentesis: An arbitrary test?
3.3.4.2. Prenatal decision making and economic rationality
3.4. The Decision Trap
4 .Conclusion: Disempowering Autonomy
4.1. The Tyranny of Choice
4.2. Autonomous Decision Making as Social Technology
4.3. Conclusion: Now What?
Back matter
Transcription Conventions
Bibliography
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